Hello to all early onset Dementia:

I was diagnosised with vascular dementia last January 2007. I have lost my job, and my drivers licsence. I am 65 years old. I have been looking for chat room messages on this topic for more many monthes. Every topic on the chat room deals with alzheimers diroder, which have some similiar symptoms, but dementia. However,Dementia has symptoms that are different and progress is in a neurological stepwise degeneration pattern. Also, I am interested in joining a chat room, a support group, doing some advacacy work for a Dementia Organization, plus joining a support group near the Salem, Oregon Area.

I have been in contact with a person (CJ) around the Salem Area, However, he has stated that he has had difficult time in connecting or interesting persons with early vascular dementia or otheerwise, to meet and share their experiences. This first and beginnning second stage stage has some challeneges that a support or chat room connection might really help me in coping with this disorder.

Nancy Joan--I don't have vascular dimentia but a couple of months back in our chat room I encountered a gentleman named Alan P who did. If I remember correctly his group (which is a mixed group) may be part of DANSI has moved on to a separate chat room. The link to it may be

http://www.alzinfo.org/community/alzheimers-chatrooms.asp

He is up beat and positive. I believe that you would enjoy chatting with him. Keep asking around and visiting sites until you run in to him. When and if you find him...Please send me the link and give me a general idea of the times that he is on line.

3/29/08 - I just found this group as I was searching for a vascular dementia chat room. My husband has been diagnosed with vascular dementia this year tho' I've seen signs something wasn't "right" for a long time. He had a stroke when he was 49 (70 now), and recovered well enough that there was no outward evidence. He was able to maintain employment. He's retired now. My latest problem has been "home business scams" and "you may have won $XXX." A friend who's hsbd had frontal lobe dementia says, "You have to keep a sense of humor." Sometimes easier said than done.

Anyway, I thought my frustration might be aleviated somewhat if I found a group of folk w/similar concerns & experiences.

8/26/08 - My mother was recently diagnosed with Vascular Dementia. I have found it hard to get information about this disease. I've learned it's caused by strokes that lead to seizures that lead to some brain damage and that it progressively worsens. I could really use some information.
Nancy Joan mentioned stages of the disease. Can anybody explain them to me and what I can expect. Right now I'm at the end of my rope and I'm not sure what to do.

Any advice or insight would be greatly appreciated.

My father has gone from speed reading workaholic with Mensa IQ and Ph.D. to someone who just sleeps and plays computer solitaire. He started this abrupt slow down with countless falls, all with him landing on his face. Now he repeats himself, doesn't pay his bills (we do), and spent two thousand dollars on a service sold door to door. Dr.s say vertigo, then Parkinson's, now neuropathy. Dad just says he's 77 and forgetful. He doesn't see a problem and so doesn't need help. How do we get the doctors and Dad to listen?

Dear Geor,

The purpose of the "Web Site Issues, Comments, Questions" forum is strictly to address technical problems/issues related to this Web Site. If you have questions or comments related to Alzheimer’s disease or dementia, please post to one of the other forums where your needs/concerns will be addressed as quickly and efficiently as possible.

The situation you have described is very important, and there are many members here ready and willing to help. If you post in the "Caregivers forum" you will receive response from other members who may have some helpful tips, advice, and support. If you post your message in the Questions for the Care Consultant forum one of the Care Consultants could also help. Please know that there is a community full of people ready to help you through this!

If you have any questions abou the message board works please email onlinecommunity@alz.org.

Bests,

my husband has vasiculer dementia he is only 64 and in a nursing home i dont no much about this diese the dr say he has severe deminta i go see him every day and every day he says that i havent been to see him it is so sad i dont no what they mean by steps of dementia i need help to under stand this

Dear Shirley G,

Hello and Welcome to the AD Message Boards. I'm sorry to hear about you husband but I am glad you've found us.

This site you posted on is for technical problems like computer problems.

Please, go to the"Caregivers" site on this forum and post there. They are lots of people like you they that can listen and help.

Good Luck.

my husband has vascular dementia he is in a nursing home he is only 64 i am having a hard time with this i have heard with dementia it goes by steps and alzameries is by stages what is the diffenice in them

Dear shirley g,

Hello and Welcome to the AD Message Boards.

Unfortunately, you have posted on a technical site. This site is for technical problems for the AD Message Boards.

Please, post in the "Caregivers site." Lots of people will answer you there.

Good Luck and Welcome.

Shirley G,

Again, you are posting in the WRONG forum!

This site is for technical problems only with this website.

PLEASE,

Go to the "Message Boards Forum Index",then go under the "Caregivers Forum" and post this there!!

Good Luck!