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Hello:
On behalf of my family I want to begin this comment by giving thanks to Mrs Mary Newport from Spring Hills Florida. After her article in the newspaper in Tampa FL we learned about many new things that have helped us to assist my father's health, so we hope it will also lead to improve many of our family member's health. See her interesting article below publish online to help other people with Alzheimers. She discovered how coconut oil worked to heal her husband's Alzheimers disease in a short period of time... It seems like an answer to our prayers ... I call it "mana del cielo " as it is a nutrient that seem to assist with many body functions and maybe a cure to different diseases... Mrs Newport experience was confirmed after we use the Virgin Coconut oil in my father's meals,(Dad 87, suffers vascular Dementia for many years) and in a short period of 5 days my Dad is getting up from bed, talking to people, he recognizes people and is coming back to his own self day after day with the coconut oil...Mom calls it a miracle! Dad's was not getting any drugs for his dementia , he was left to die as he is 87 years old.. VA hospital only gave him some kind of informal hospice at home. They talked to us as if there is no hope for him. The treatment with Coconut oil proven them wrong! People can age with dignity if we trust in God and nature...Love you family members with dementia and keep looking for answers, no matter if doctors attempt to kill your hopes...There is always hope if we trust in God! I was so impressed by the many testimonies in the internet articles of people that can show how Coconut Oil has helped them; to lose weight, to balance thyroid production, helps to balance sugar levels for those with diabetes, seems to tranform fats into energy , strength the immune system, could assist in the healing of many autoimmune diseases, and most of all seems to help people with neuro-degenerative diseases as it is Alzheimers, Parkinson, Autism, ADHD , Multiple Sclerosis , Huntington's disease, Lou Gehrig among others. It also reduces cholesterol levels, serves as an antiviral for those that suffer diseases as it is Herpes Zoster and others...It is also talking about HIV patients and the benefits to them and even cancer. It seems beneficial for babies and (Mrs Newport works in a neonatal unit at a hospital) she researched and discovered that MCT oil is an ingredient concentrated in breast milk and is has been used to mimic breast milk in infants formulas. MCT can be found in Goat milk but in lower concentrations. So seems to be a nutrient that assists with many bodies functions and chemistry. ( MCT OIL is a modular source of MCT for patients unable to digest or absorb conventional fats. MCTs are more readily hydrolyzed and absorbed than conventional food fat. MCTs require less enzymes and bile acids for digestion than conventional food fat. MCT stands for medium chain triglycerides. Most naturally occurring fats are triglycerides - tri meaning that each molecule have three carbon chains. In the medium chain triglycerides each chain has 6 - 12 carbon atoms, and for the medically refined grades of MCT oil each chain has 8 - 10 carbon atoms. MCT oils occur naturally, and the most abundant source is coconut oil. Most MCT oil is refined from coconut oil"). Mrs Mary Newport, also found a drug called Ketasyn. The drug is being under research by Dr Veech to treat Alzheimer's , and the drug' s main component is MCT . This doctor recommends family members of people with Alzheimer's to tape them talking , walking etc..before using the Coconut Oil and then taping them after the treatment to reflect the progress. Also to test ketones before and after to compare the increment of ketones production. Mrs Newport mentioned in her article ,the coconut water and milk to substitute for regular milk and otehr articles mentiones as substitute for juices with too much sugar. Mrs Newport as I understood, is giving her husband 7 teaspoons twice a day in meals, but she advices to start with 2 teaspoons with meals until people could have an idea of which dosis can be tolerated. There is a need to research about the right dosis to determine how to stimulate ketone production , since this is something new... Some people could get diarrhea...She mentioned about the Ketones and how by giving it the way she does it to her husband he can keep Ketones functioning for 24 hours so the healing to his Alzheimer's is faster.. But she also uses an oil called MCT that I found at Vitacost.com,( they also have Estra virgin coconut oil 54 oz for $19.99 which I ordered for Dad) as well as omega 3 or Salmon twice a week. The MCT oil helps to make the process faster as well. Also needs to get rid of vegetable oils and margarine. Some articles also add to eliminate peanut butter and products with soy from the diet as it causes problems with theyroid function. Other articles mentioned not to eat tuna to those with thyroid problems due to mercury in the fish, so they recommend Salmon. Mrs Newport mentioned the use of CO along with olive oil and real butter, but mostly coconut oil in the meals. MCT doesn't have omega 3 so this is why it has to be added to the diet. Pretty soon we will see lots of coconut products in supermarkets as the word spread out. Seems that humans are killing themselves by the way they eat and by processed foods. No wonder statistics on diseases are rising as we consume rancid vegetable oils, margarines and peanut butter with satturated fats and soy beans. Our bodies are reacting to modern foods processes and most people dont know it. It is like using bad gasoline in your car... These articles below are so interesting so please read and pass these on to all people you know. So more people can educate themselves and could make better choices to better health. Click here: http://coconutoil.com/Alzheime...aseDrMaryNewport.pdf Click here: Dr. Mary Newport, Coconut Oil, Keatones, and Dementia A good tool to fight Alzheimer's - Topic Powered by Eve For Enterprise Click here: How to Help Your Thyroid With Virgin Coconut Oil Click here: Smart Basics MCT Oil -- 16 fl oz - Vitacost Click here: MCT Oil | A Modular Source of MCT for Patients Unable to Digest or Absorb Conventional Fats Click here: MCT oil in the ketogenic diet Click here: The plain truth about coconut oil Click here: Could taking high-fat coconut oil be a 'cure' for Alzheimer's disease? Click here: Features | Online edition of Daily News - Lakehouse Newspapers Click here: Coconutoil.com - Negative P.R. Campaign Click here: http://coconutoil.com/DayritCardiology.pdf Click here: SpringerLink - Journal Article Click here: Coconutoil.com - Health Benefits of Virgin Coconut Oil Click here: Coconutoil.com - Research on Coconut Oil |
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I'm very happy for you and your family. Please let us know if he continues to improve or stabilize.
Felicia famc17@yahoo.com Caregiver for Mom Dr. Tobinick's website: http://www.nrimed.com/ |
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Vitacost is selling NSI Brand "Extra Virgin Certified Organic Certified Coconut Oil" in softgel form - 120 softgels for $9.99. Following are the supplement facts:
Supplement Facts Serving Size: 4 Softgels Servings per Container: 30 Amount Per Serving % Daily Value Extra Virgin, Coconut Oil 4000 mg * Calories 35 Calories from Fat 35 Total Fat 4 g 6% Saturated Fat 3.5 g 18% Polyunsaturated Fat 0.3 g * Monounsaturated Fat 0.1 g * Trans Fat 0 g * Cholesterol 0 g 0% Sodium 0 mg 0% Total Carbohydrates 0 mg 0% Protein 0 mg 0% Fatty Acid **Profile: C8:0 Caprylic Acid 5.9% C10:0 Capric Acid 5.7% C12:0 Lauric Acid 49.0% C14:0 Myristic Acid 19.6% C16:0 Palmitic Acid 9.3% C18:0 Stearic Acid 4.0% C18:1 Oleic Acid 5.4% C18:2 Linoleic Acid 0.8% * Daily Value Not Established **Fatty Acid percents will vary slightly batch to batch due to natural variations in the coconut oil. Other Ingredients: Gelatin (softgel). Free Of Titanium dioxide. Directions As a dietary supplement, take 4 softgels daily with meals or as directed by a physician. Would these be a suitable substitute for using the coconut oil in oil form??? Opinions/comments please. DZMama12 (at) yahoo.com (Caregiver - YOAD Brother, Age 56) |
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I might be wrong but I think it would take almost 14 capsules to equal 1 Tablespoon of the regular coconut oil. These might work if you weren't taking very much of the CO. Maybe someone more proficient in math can answer this question better. I'm just calculating based on the 120 calories in a Tablespoon of the CO compared to the 35 calories in 4 capsules.
(Read my thread that contains the results for the CO/MCT oil we are using at) http://alzheimers.infopop.cc/eve/forums/a/tpc/f/762104261/m/63910335/p/1 |
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Thanks Amelia.
JAB??? Dr. Newport??? DZMama12 (at) yahoo.com (Caregiver - YOAD Brother, Age 56) |
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Regarding the coconut oil capsules, they usually contain 1 gram per capsule, so you would need 14-15 to equal a tablespoon of coconut oil. There is one brand that lists 4 grams in a serving, but if you read carefully, there are four capsules per serving, thus 1 gram per capsule.
To the Cruz family, That is very exciting and encouraging news for others about your father. I am very pleased that you found this information! I do have to clarify that Dr. Veech's research is not the Ketasyn product, but rather is a ketone ester that can produce much higher levels than coconut oil, MCT oil or the ketasyn product, now called Axona. When I wrote my article "What if there was a cure for AD and no one knew?" the cure I am referring to is the ketone ester. Dr. Veech is finishing human toxicity testing this month on healthy subjects, reaching levels about 15 times what were measured with Steve on coconut oil, and there have been no adverse effects. He has also learned that there appears to be more to the ketone effect than just working as an alternative fuel; ketones also appear to be involved with growth of new neurons and nerves. He is able to make about 10 pounds of the ketone ester a week in his lab, but needs funding for a facility to make it in much larger quantity to test in AD, Parkinson's and other neurodegenerative diseases. In the meantime we can use the oils with medium chain triglycerides to produce ketones; the true cure will be the ketone ester itself. Dr. Mary Newport |
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Thanks Dr. Newport.
DZMama12 (at) yahoo.com (Caregiver - YOAD Brother, Age 56) |
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Dr. Newport - please see what's going on on our Tau Busters thread.
DZMama12 (at) yahoo.com (Caregiver - YOAD Brother, Age 56) |
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has anyone noticed an increase in weepiness or sadness with the CO/MCT? We have just started this week with it and are up to approx one tbsp/meal with no diarrhea. However more sadness and weepiness (with no more ability to tell us why than before). Could be related to other things, more awareness of situation made possible by the C0/MCT or a negative side effect? Any thoughts?
ST co-caregiver of Mum ST |
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I have not seen the sadness or weepiness in either my mother or my FIL.
In my FIL's case, my SIL didn't think much of the MCT oil idea until she spent a day with my FIL when he DIDN'T get the oil. Amelia mentioned that for the woman she is caring for, it seem to wind back the clock on the symptoms. She is seeing symptoms that were present months ago. Could this be what is happening? swarfmaker rocketmail.com |
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Hello ST,
I have been using coconut oil and cocnut milk(Powder) for almost 2 weeks for my momm and I noticed a light improve in her behavior after that I stopped the axona because it caused her(The Axona) confusion and irritation(with sweating).I don't know if anybody noticed these negative effects of Axona. But for coconut oil,it was more beneficial!so,don't give up on coconut oil,maybe this change of the mood and the depression will pass (don't forget that Alzheimer's has many symptoms an you don't expect coconut oil to cure all the symptoms )but it will SURELY help to improve her behavior ... we have to take in consideration that patients don't react the same on each treatment ,some found a big change,quickly, when they use coconut oil as for my mom,it wasn't so quick but it was evident for me because I take care of her all the time. What about Axona? I don't know if the confusion and some hiccups were due to his side effects? Can somebody tell me about it? Hope |
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I've seen the same "winding back of the clock" on certain symptoms that swarfmaker noted. My partner, who had become very calm and almost listless in the latter months before I began the oil is now again having anxiety and panic attacks like those that occurred earlier in the disease's progression.
And, as I've mentioned elsewhere, his handwriting is beginning to resume more of its old flow and openess; he is seeing computer icons and cursors, and buttons on remote controls that he had become unable to see; and his manual dexterity is improving with things such as fastening seatbelts and tying shoes. Even though his reading is still seriously impaired, he has recovered an interest in reading and is disciplining himself to read a few minutes each day, no matter how frustrating. The mere fact that he has gained that motivation is encouraging. His short-term memory remains the most impaired function, but even there he has remembered or noticed a few things lately that I had overlooked. (As my sleeplessness and exhaustion have grown, I find my own sharpness noticeably impaired some days.) |
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If it is winding back the clock than it is back to the emotional state of 7 months ago. THe living arrangements have changed since then so we may have to wait longer to see if there are any other noticeable changes. eg routine has changed. It is certainly not in my mother's best interest to do any formal testing to measure change. THe stress and the destructive cortisol that that must stimulate in her brain based on her severe reaction to such tests is for harmful than any gain. So we are wanting to measure by functional activity. The emotion does not last as long right now although we have prn pharmaceuticals available to us now that we did not 7 months ago. So no conclusive data from us yet.
As an aside I have found the chocolote fudge, a virgin pina colada and a banana milkshake are passable ways to get the CO/MCT into the diet in a nice way. THanks again for your insights and hmp10 I hope you are able to find a way to take a break! |
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I posted this at the DS/AD CO results thread, but thought I should post it here too to help anyone reading this thread.
ST My lady has experienced some behavior/emotional problems lately. I have seen a kind of "backwards" spin through time with her. I don't mean less cognitive abilities but actually going back in time with her AD and the order that things happened and awakening the emotions, behavior, memories and abilities she had at that time. She is now displaying emotional symptoms that occurred well over a year ago, but they are more pronounced. This is probably due to either the AD or the change we had to make in her medications which I'm hoping will eventually start working in the next 3 weeks. She is very weepy at times and then will get very angry and hostile in just seconds. I don't believe it's caused by the oils, but that the oils, cinnamon and curcumin we are using are unlocking things in her brain "backwards". Amazingly, she is still gaining in cognitive abilities though in spite of all of this. This has been something that has happened in the last couple of months and she has been on the oils since Feb. of 09 so I don't think it's caused by the oils themselves. As far as I know, the oils or Axona don't cause this kind of side effect. When all of this started, I was very worried that she was getting worse with the AD, but then she displayed more cognitive ability so I was very puzzled by what was happening. After talking to some people who have AD on the message board, they really helped me to understand some of the effects of AD on a person's emotions. You could try searching the message boards for people who have AD to see if any of them could help answer some of your questions. Your LO may be gaining more cognitive thinking with the oils and developing a type of "awareness" of what she is going through, which may be causing the emotions. AD causes behavior/emotional problems on it's own too. If she is thinking a little more clearly then she may be experiencing some depression over her situation. You should talk to your doctor and see if he can give her something that will help with this. Once this is under control and she is feeling better, then you may see more improvements. My lady has just started to take 250 mg of Depakote ER and each dose takes a month to reach the helpful level she needs. She was doing well with the first dose the first month but it wore off in the afternoon which brought the symptoms back. She started a second dose in the morning just last week and it turned her into a weepy/angry/yelling little monster who is worse than before she ever started. The neurologist said it would take another 3 weeks to start working. I hope he's right because I'll be hearing impaired and she will surely get laryngitis if it goes on much longer than that! LOL She had been taking Celexa for depression but it wasn't working any more and the doctor said she needed a mood stabilizer. She would be like Jekyll and Hyde. Laughing then angry when someone said anything, then weepy and then laughing etc. all within a matter of seconds. I don't know if this is what your LO is going through or not but I hope it helps. I'll let you know how the Depakote works. The Celexa worked very well for her depression which is when she experienced just crying episodes last year so this may be an option for your LO if she is depressed. Talk to your doctor and see what he recommends. I hope your LO feels better very soon. If I hear of anyone else with similar problems, I'll post it here for you. (Read my thread that contains the results for the CO/MCT oil we are using at) http://alzheimers.infopop.cc/e...04261/m/63910335/p/1 (Read my thread that contains the results for the CO/MCT oil we are using at) http://alzheimers.infopop.cc/eve/forums/a/tpc/f/762104261/m/63910335/p/1 |
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I also wanted to tell you that my lady is now learning the names of people she has just met and sees fairly often and is remembering their names. She is also learning new abilities and retaining them, even though they may be small. This has really become apparent since I added the Longvida Curcumin to her diet. This is still fairly new so I'll have to keep you posted on any updates about this.
(Read my thread that contains the results for the CO/MCT oil we are using at) http://alzheimers.infopop.cc/eve/forums/a/tpc/f/762104261/m/63910335/p/1 |
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Question for those using coconut oil...I told a friend about MCT fuel (my DH was on MCT until he started the Dimebon trial). She started her DH on it and then I mentioned the coconut oil. She started the CO about two weeks ago and she thinks he has been more confused. She has discontinued it. Has anyone else had this problem? I don't recall seeing that anyone had problems but may have missed any mention.
TKS! |
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Whitney, hi. Did you see the thread:
"ST - Your question about the effects of saturated fats on cognitive function" I think it's entirely possible that people have noticed increasing confusion on coconut oil, going from MCT oil to CO, but just assumed that it wasn't working for their ADLOs, rather than realizing it might actually be causing the confusion. Any negative effects of the longer-chain saturated fats might initially be outweighed by the benefits of the shorter-chain if the ADLO is started on coconut oil, and then the MCT oil added. |
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Thanks, JAB, I will certainly look at that thread. Our friend started her DH on MCT fuel and later added the CO. He is still on the MCT at this time.
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whitney
Has your friend seen any improvement since stopping the CO and did she notice any decrease in behavior while he was taking the CO? Thanks (Read my thread that contains the results for the CO/MCT oil we are using at) http://alzheimers.infopop.cc/eve/forums/a/tpc/f/762104261/m/63910335/p/1 |
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Thanks for asking, amelia99. Our friend stopped the CO about a week ago and she said there is an improvement. She is still giving him the MCT fuel. There was an improvement when she started the MCT and she said she would continue with that.
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Did your friend change the quantity of MCT oil when when the coconut oil was started or stopped?
I happened to find this "Google Book". "Nutritional ergogenic aids" By Ira Wolinsky, Judy Anne Driskell. Here is a chaper on medium-chain triglycerides: http://books.google.com/books?...v=onepage&q=&f=false swarfmaker rocketmail.com |
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I don't believe the quantity was changed when the CO was added and I didn't ask about now...I'll try to find out. |
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Hi Dr. Newport, I've emailed you earlier this yr and you were kind enough to email me back. I've been giving my Mother, 3 Jeanie's Macaroons with lunch, 1Tbsp of CO on her slice of cinnamon toast, and in her pill supplements I give her 4 sized "00" capsules filled with nutiva virgin CO. (I think I have a pretty good routine now in the filling/chilling/capping process) At bedtime she gets another 4 capsules. Is this anywhere near enough? I fear that it may not be, but she balks at the idea of taking more and becomes very agitated when asked to. Her appetite is very limited, has been for many years, so getting the CO mixed into her 2 small meals of the day is difficult. I've been a little successful with mixing the CO with reduced-fat whipped Philly Cream Cheese and spread on crackers. How many more 00 capsules do you feel would be needed? MCT oil has not yet been added to her daily routine. Not sure how that would work since it appears to have a higher melting point and the capsules would dissolve. thanks for all the good work you have done! |
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swarfmaker, I talked with our friends last night and the MCT Fuel amount has remained the same...1 Tablespoon 3 times daily. She did notice improvement with that and then added in the CO when I told here what had been suggested here. After he showed more confusion, she stopped the CO and he is now using only the 3 Tablespoons of MCT Fuel. He is back to where he was (she thinks) prior to the CO. His blood work showed a rise in tryglicerides.. (forgive spelling...its very early!) and the doctor was concerned about that. |
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The book was published five years ago, that means that almost none of the scientific literature from the past 7 - 8 years is included. Did you take a look at the references that are cited? I'm seeing papers written as long ago as 1951. And the majority are on animal model studies. Do you think maybe we could stick with human consumption studies, preferably those done this century, so they involve our current understanding of fat metabolism in humans, not rats? |
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To Franco,
However much your mother can reasonably handle without diarrhea or other issues is enough for her. People have come up with excellent ideas of how to creatively get more coconut oil into the diet, such as the coconut oil "fudge," putting it into soup, on veges, rice, noodles, pasta, potatoes, sweet potatoes. She might also like coconut milk to drink or put on cereal, mix with orange or other juice, or in smoothies (to make a batch mix 1 can coconut milk with 1/2 can water plus equivalent of 1-2 teaspoons of honey or other sweetener and a dash of salt-easy!) With this recipe about 1/2 cup would equal a tablespoon coconut oil and about 160 calories. Most of the calories are from the oil, a few grams (3-4) of carbs depending on how you sweeten it and a gram or so of protein. Dr. Mary Newport |
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And while we are looking at studies, let's also include only those without design flaws, that include only very large samples, men and women, older people, and in which all other aspects of the diet and environment are controlled so that there are no confounding variables. Might be hard to find any perfect studies in people. Also, all of what we know today regarding nutrition has its foundation and builds upon what was learned fifty or more years ago; all of that work should not be completely disregarded. We also can't assume that the quality of studies done today are somehow superior to those from before the year 2000.
Dr. Mary Newport |
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I think you want to see improvements with CO but I doubt very much that it really works.I have dementia I don't do any of the weird stuff advertised or mentioned......
SnowyLynne |
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Our understanding of fat metabolism, the effects that saturated fats have on health, and the complex interactions with many other dietary constituents have changed dramatically over the past decade ... as anyone would know who had been reading up on it.
So has our understanding of AD and its underlying pathologies and risk factors. As our understanding changes, the way that studies are designed changes accordingly, and so is the way older research findings are interpreted. We can't make assumptions about studies, quite true. That's why I keep saying people need to read the studies for themselves, to see what they really say, and what was really done, and whether they are high-quality and the findings reliable. |
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My partner has been on CO/MCT since mid-August, on Axona since August 21, and on circumin and cinnamon extract since early September.
For what it's worth, here are my observations so far: Things Showing Sustained Improvement
Seeing buttons on remote controls Reading signs Carrying a thought through to conclusion Shaving and personal grooming Physical coordination Fastening seatbelts Remembering recurring characters in episodic TV Washing and putting away clothes and dishes Interest in following the news Interest in reading again Joking and re-emergent sense of humor Things Showing Intermittent Improvement
Remembering days, dates, and times Noticing details about himself and others Handwriting Reading comprehension (though still very labored) Operating electronic gear Helping with making the beds and other coordinated activities Picking out clothes and dressing himself Remembering to take meds Things Showing Decline
Finding the right word (usually nouns) Remembering his diagnosis Remembering why we're doing something or going somewhere The early morning anxiety attacks he developed two weeks ago are continuing but at lower intensity. He is also showing more signs of boredom, complaining of "how small" his world has gotten, of not being able to drive, of having to depend on others too much, and craving to do more. I'd be interested to hear the details of how others on the oil therapy are faring. Thanks. |
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Medications/Treatments for Alzheimer's and Other Related Dementias
Coconut oil and Alzheimers
