I am the primary caregiver for my mother who has been diagnosed with dementia a few years back. She is still living by herself but the short term memory is gone and she does not drive.

A little of the background, now the hard question. Could someone tell me what a day is like having dementia? Do you get scared? Is it just thoroughly frustrating? Does nothing make sense?

My Mom seems to be content...but where she lives there is no one for her to talk to all day until one of us goes to see her...and we take turns so someone goes by everyday. She gets sad when we tell her we're going home.

Thanks for sharing...

Kim

Kim, as a person with dementia I can share with you that it is very frustrating as well as heartbreaking because though this disease is not our fault there is absolutely nothing we can do to stop the anger and aggression that takes us by surprise many times. it is hard to see the pain that this disease causes to our loved ones, especially when in my case I still have a 13 year old at home. No child at this age should have to see his parent suffer like this, not to mention the incredible stress it puts on them along with their own issues of independence and puberty. A very cruel disease no matter which side of the fence you are on.

Hello Tracy,

Thank you for your answer. Can you share some of the things my mom may be experiencing living by herself? Would she be getting scared? She was never scared at home by herself before.

She only seems to get frustrated at times...but mostly a very pleasant person to be around. And this message board has helped with me not trying to make her "normal". Even though at times I get frustrated too.

I feel as though she is in somewhat of a comfort zone in her own place right now. How would you feel if someone took you out of your home?

P.S. I hope your child knows how wonderful you are to have this disease and at the same time you are helping so many !!

Dear Kim,
Alzheimer's disease is different for everyone. Some people feel anger, frustration, fear, and paranoia. Many people isolate socially or become very depressed and lonely. Have you thought about speaking with you Mom about going to an Alz day support program (called Adult day care)?? This would get her out of the house, be socially active and stimulated in the right ways!
Please take her to her local Alz. Assn for support, assistance and guidance.

Good Luck

Peace And Hope,