I have posted about this before but only on the Medications and Treatment Forum and I just wanted to post this in different forums in case someone didn’t know about this and would be interested in trying to get into the clinical trial. This is at the BRNI (Blanchette Rockefeller Neuroscience Institute in WV). Senator Jay Rockefeller started BRNI in memory of his mother who died of AD. It is the only non-profit institute of it’s kind. I suggest after you read the below article, you read everything that they have at their website to inform yourself with the program and the science behind it. From everything that I have read or am doing now to help my LO, this appears to me to be the most promising, but that is only my opinion.

Here’s the link to the newspaper article from Dec. 07 that really prompted my interest because I think that it is going to be the pathway to a cure in maybe not so much the medicine used, but the way it is delivered to the brain. They essentially wrap the medicine in a coating of proteins that the brain barrier allows to pass through which then gets the medicines to the brain where it is needed.

http://www.brni.org/news/PressRelease12407.htm

As far as I know, they haven’t started recruiting yet for the phase II clinical trials that were suppose to start this summer. I called and talked to someone there, and the problem was coming up with the funding to start the trials now that they finally have gotten the FDA approval to do them. I have had my lady on the data list since Jan. 08 but I don’t hold much hope of her getting in the phase II trial because she wouldn’t be able to perform the standard MMSE and I believe that may be a requirement, and because she also has Down Syndrome. From the materials they sent me, my understanding is they will do the trial and if the results are good, the phase 3 trial will provide treatment to patients through their own doctors. The doctors will be trained on line and then will report back to BRNI the results etc. of the treatment. This is so patients can receive treatment without having to make trips to Morgantown, WV and hopefully more people can be involved this way.