Update on my meeting withy Mark.

Mark and his wife are wonderful people! Unfortrunately, I don't expect to see him join this board, we aren't all comfortable with typing or computers.

The one that bothers me the worst is, I'm fearful that we won't continue to grow together. To make it feel even worse, mark only lives about a mile from me. He and I have different hours of being lucid. Mark works ever changing hours and days so I never can be sure when to call him. I'll work to get around these road blocks and I know thatg our wives will do the same!

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The one that bothers me the worst is, I'm fearful that we won't continue to grow together.

Tom, I think that looking into the future is to be avoided. One of my doctors told me that, and the others agreed with his verdict.

But what we can still do, is believe in a good day. Just a day when we can get with a friend and bond together. I had a big old chunk of that today, immediately followed by some not so good stuff. But y'know, right now I'm just glad that I had a good hour or so with an old friend.

Perhaps you and your doctor have a valid point. Notice I couldn't agree that it was a good point. Not looking into the future and living life with your eyes focused on a goal would be hard for me. But I can understand how it might be helpful.
That is so sad to think that we should live live for each day. I have always been adiment that we need to stay focused on the goal. I've drilled that value into all of my off spring. What a significant change in like style that would be for me. Considering what I know of you, this was a problem for you as well. People don't work at the levels you atttained without that value. Do you have any suggestions?

Tom,

I'm glad you had your meeting with Mark. You've come face to face with someone like yourself. How did it feel? I hope the over all experience was positive. Remember, making friends as we get older is more difficult. And even more so with our EOAD.

I agree with Alan. Enjoy each encounter. Perhaps you will find others like you and Mark?? I know taking a day at a time is a different approach but try it. It may not be as hard as you think!

Thinking of you.

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That is so sad to think that we should live live for each day. I have always been adiment that we need to stay focused on the goal. I've drilled that value into all of my off spring. What a significant change in like style that would be for me. Considering what I know of you, this was a problem for you as well. People don't work at the levels you atttained without that value. Do you have any suggestions?

Tom, I was Type A on the job, and what progress I made was linked to making really good to-do lists. I kept daily ones, and a long term one. Now, if I make a list, it's a rare day that I accomplish much from it.

I gather that my neurological disorder will kill me slowly and painfully, maybe before my AD stuff gets me. That's also what the doc was talking about, when he said to avoid thinking of my future. So far, I can attest to the painful part, not sure about how slow it feels.

What help I've found has come when I've changed the physical location of my to-do list. For a while, I'll put it on this dry-erase board I have. I'll email one to me for a week or so. I'll have it on a post it, or maybe on a tablet that's pre-marked for daily organizing. I eventually don't notice a particular way, so I rotate the method and hope for the best.

Alan, it just is not fair to think about the shovel of poop that has been dumped on you. Us type A's are a dying breed. Charm schools a preeching against us all the time. I used to ue a program (I have foregotten the name of it) that allowed me to schedule email notices to me so I didn't miss checking up on my projects. It was a MicroSoft product.
Now I remember the name, "Microsoft Progect"!
Alan, please don't leave me, I need you!

Tom, I had the training too, in Microsoft Outlook. Not no stinking Microsoft Outlook Express, nope, but the real, full program. It was wonderful, including the reminder function.

Charm school? Not in my America! Where I come from, it's the tough that are rewarded. Seeing a problem, and making it a personal quest to get it solved, even if some people have to be shoved out of the way. Never backing down from conflict.

As for leaving, nobody can realistically estimate how long I'll be around. I asked my doc twice recently about what I might be doing in 5 years, and he dodged the question both times. Who knows, maybe he plans on retiring in 4 years & couldn't care less?

But my brain might surprise me, and leave before the rest of my body. Getting lost in a familiar place yesterday was quite a trick. I've wondered if I'm on the edge of a cliff, about to fall a long ways, a.k.a. Stage 5. I worry about my November 10 SSDI hearing, wonder if getting to the other side of that will collapse my brain.

Tom, Alan et al,

So were we all type A's?? lol.
I never asked anyone to do anything I couldn't or wouldn't do myself! I think the new ways of thinking suck sometimes. What's wrong with being a little anal, it gets the job done and done well!!

Perhaps this new lack of accountability is the problem. Years ago, if you made a mistake you'd fess up, took the punishment, listened to the lecture, learned, and moved on never to make the same mistake!!!

What's going on now?

Hang in there, Tom!! We love you!!

Alan, getting lost in familiar places was one of the symptoms that caused my wife to seek help for me in 2006. I got diagnosed in 2008 and seem to be improved now. I don't think that geting lost once in a while will drop you into stage 5. I think it is just one of those "bad day" things.
In my Engineering world we had to stick with a project until it was fully operational in peek cost effectiveness at six sigma quality. Very often it was necessary to allow other people to come up with an idea (mine that I was pushing but could not let them know it was mine) and grab the owership.

Lisa,you're a trooper! Your position of patient and caregiver would be too much for me.

Hey Guys,

Bought a GPS for when I got lost. Now, everything is packed and ready to move......where's my GPS??? don't know! Sometimes, ya just gotta laugh!!

My sunglasses have ended up being the most creatively placed. I found them in shoes recently, neatly folded.

I'm planning on being a bicycle rider, in lieu of automobile, for short trips. I've been planning it for quite some time, but it seems like everywhere is uphill both ways. But then there's Lisa's experience . . .

Ya know, I would love to be able to ride a bike. I tried one that a friend let me borrow. My balance is off and I fell twice while attempting to slow down. As long as the wheels (gyroscopes) keep turning rapidly I was fine. Slowing down seems to be when the problem arises. Maybe I should just run into a wall, that would stop me without falling. Why didn't I think of that while I still had his bike?

Lisa what type of gps did you get? Who will go looking for you? Are you signed up for the Safe Return program?

Did you ever hear from that woman in Mississippi? I forgot her name.

Iris L.

I wonder if they make a manly looking trike? My lack of balance keeps me from safely operating a bicyle and the lack of a drivers license keeps me out of motor vehicles. I want to go fishing at the river about a mile away from the house while my wife works during the day.

Got any suggestions?

Tom,

The trike I bought was at www.walmart.com on line. It was a cool blue with a basket on the back! I really liked it. I plan to get another when I heal up.

Hope you check it out!

Iris, I can't find my GPS right now to tell you the name but it did call out the street names! I have not heard from the woman in Mississippi yet. Hope you are doing well.

Alan,
It may be trike time for you too!! My accident happened while climbing a curb. Perhaps Next time I'll stop before I go up!!

I do have to figure out a way to get around on my own!!!!

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Originally posted by Lisa 428:
Tom,

The trike I bought was at www.walmart.com on line. It was a cool blue with a basket on the back! I really liked it. I plan to get another when I heal up.

Hope you check it out!

That is a nice trike Lisa, thanx. I'm looking for something a bit more manly. Maybe with a four speed stick shift in the "step through" area with a fake V8 in the rear basket! Ya know.... more power!

Tom, this is America - there has to be something available for manly biking on 3 wheels. Heck, I've seen people take perfectly good motorcycles, and turn them into a 3-wheeler.

Not that I know how to look, but I'll bet there's a manly alternative. Seems like I've seen one, a close to the ground one where the pedals are sort of in front of you. A reclining bike it might be called.

You might could just call the biggest bike store you can find, ask them.

Tom, do a google search on Motor Tricycle. It has a whole bunch of ideas.

What about a golf cart? Do you have to be on a main road to get there?

It's a darn shame you are so close to fishing at the river and can't get there.

Tom,

I guess Men will be men but you may find someone to adapt that trike to YOUR style!!

No motors, please!!

Love ya,