Hello,

I am a 48-year-old female who was diagnosed with early onset dementia late last year. I was just given this website as a place to find others suffering with this same disease.

My name is Randy and I live in California.

Dear
randy: I am very sorry you have been dx'd w/EOAD!!!

Pls check out my appeal to alz advisory bd at: http://freepage.twoday.net/stories/3038870/

Call or write w/questions,,,,,joanne injured fingers -- trouble typing

Hi Joanne,

I clicked on the link but not sure what I am supposed to do here or what this appeal is about.

Thank you for welcoming me to the group.

Hi Randy,
I'm 48 too, in North Carolina, and have no firm diagnosis yet. I found this site a few weeks ago, and folks here have been very kind. I hope we can all learn how to cope and help each other in this journey. Welcome.

Welcome. There is a woman named Tracy Moberly who posts her quite often. She is a great source of information and inspiration. You can probably find her posts by entering her name in a search. I believe she posts under the name Young hope.

Dear Randy: The main reason I referred you to my email to Dr. Marilyn Albert is to call your attention to information I have written about re my husband's Alzheimers improving after movig his electric clock radio off his nightstand.

I am primarily concerned that you need to know the importance of checking sleeping areas for EMF/EMR (electromagntic fields/electromagnetic radiation) sources of "chronic, prolonged exposure."

The list of electrical items and telephone equipment that should not be closer than 3 ft. to one's bed is very long but includes any electric clock, small fans, lamps w/dimmer switches, touchlamps, high intensity lamps, monitors, noise machines, air purifiers, security alarms, transformer boxes for cordless phones and electronic games, cell phones and cell phone chargers, electrical items on other side of wall esp. from head of bed, same re cordless phone transformer boxes, etc. Electric meters and gas meters (often the pipes themselves including waterpipes that carry current) and many more items may trigger any health problem all the way from poor sleep to cancer -- including Alzheimers-like memory problems and cognitive dysfunction.

Persons may also have a bad wire close to the bed.

Since my husband, Bud, is now said not to have Alzheimers afterall -- and since he "improved" on three parts of his Executive Function after moving his electric clock radio and discontinuing statins, I am suggesting that anyone who is diagnosed with EOAD and even those who are older at time of diagnosis, may find they also improve if "prudent avoidance measures" are taken re nighttime EMF/EMR exposures.

As I mentioned before, feel free to phone or email with additional questions. It will also be important to share any such improvement so this information can be passed on by me to the National Institute of Health and also so I can once again appeal to the Alzheimers' Association for cooperation in regard to informing the "innocent public..."

I sure hope you are able to help improve your own situation!!! Take care - Joanne

So sorry Randy! I want you to read some of Younghope1 she is 43 with EOAD and extremely active.

Part of a Posted May 21, 2007 03:01 PM Hide Post
tkb, thank you for your condolences. I would love it if your husband wished to e-mail me. tiger@todays-tech.com
If he wishes, he may call me as well:
417-345-1709

Tracy Mobley
Diagnosed age 38, now 42
post by Tracy...(mobley)

She has some really good sites and must read material for you...she is so inspirational, she will lift you up...

I will say my prayers for you.

Beckie

I should add that usually by now she would have introduced herself to you..but her mom just passed away. Give her a few days..if you need to talk there are many caregivers in chatroom 1 at 8pm cST...there is also a chat for EOAD persons as well...

hugs..

Hello its me again!! sorry...

foun Posted May 10, 2007 03:19 PM
This is a reminder that there is chat for individuals with dementia at 6:30 pm Central, 4:30 pm Pacific, 5:30 pm Mountain and 7:30 pm Eastern. Hope to see many of you here. I only hang around for about 20 minutes, if no one shows then I go on. If we do have individuals that wish to show up chat last until 7:30. Central.

Tracy Mobley
Diagnosed age 38, now 42
d the thread on Chat for you..

Sorry to hear of your dx Randy.With the medications out there,there is hope.I was dx'd 0ver 10 yrs ago with EOAD,BUT,I was doing too well for AD so I Insisted to be retested.Now I have a dx of Vasculer Dementia.Also a good friend of mine was also dx'd with vascular Dementia after 12 yrs thinking she had EOAD.Keeping your mind active & having a positive attitude helps greatly.......

Hi Randy, it has been awhile since I have heard from you, how are you doing? PLease feel free to contact me and I will help in anyway I can.
tiger@todays-tech.com or feel free to call me:
417-345-1709