There use to be alot of people with dementia that partricipated on here, where have you gone? Why have you gone? I feel so alone in this group. Please come back!

Hi Tracy,
I guess most of the group are in the caregivers section? You are not alone......

quote:

Originally posted by Dave S.:
Hi Tracy,
I guess most of the group are in the caregivers section? You are not alone......

Hi Dave, I am referring to the individuals with dementia. Where have they gone? There is only 2 or 3 that seem to participate even in the caregivers group.

[QUHi Tracey!
I am sorry I have not been on for so long.I have been having a hard time the past couple of weeks.

We need to try to stick together, sister!!!!!

love you!!!!

talk to you soon!!!!!!!!!!!!!!!!

tamiOTE]Originally posted by younghope1:

quote:

Originally posted by Dave S.:
Hi Tracy,
I guess most of the group are in the caregivers section? You are not alone......

Hi Dave, I am referring to the individuals with dementia. Where have they gone? There is only 2 or 3 that seem to participate even in the caregivers group.[/QUOTE]

Hello,

I have demtia at age 58 and I am here.
Today I became angry with a strnger and my husband. Today was not the first time. I find that I do not want to leave the house. I never know what my behavior will be like.

Can anyone relate?

quote:

Originally posted by Rebecca Groves:
Hello,

I have demtia at age 58 and I am here.
Today I became angry with a strnger and my husband. Today was not the first time. I find that I do not want to leave the house. I never know what my behavior will be like.

Can anyone relate?

Hi Rebecca and welcome, yes I can relate very much so. Our anger and mood swings is apart of this disease. With me, every day is a new day. My husband gets so frustrated because he never knows what my mood will be one minute to the next. I am glad that you are here and hope that we can get to know each other.

I was diagnosed in 2002 with early onset alzheimers and have been very active as an advocate for alzheimer's disease. If you need someone to talk to or just listen, I am here.

Hello Tracy,

Thank you for finding my note. I am new here and need very much someone to talk with. My agitation is now starting to get worse. I do n ot understand why I get so mad at others. I think I am truly mad at myself.

quote:

Originally posted by Rebecca Groves:
Hello Tracy,

Thank you for finding my note. I am new here and need very much someone to talk with. My agitation is now starting to get worse. I do n ot understand why I get so mad at others. I think I am truly mad at myself.

Rebecca, if it would help I would be happy to chat with you by phone 417-345-1709, if I'm not there leave a message and I will get back with you or you can e-mail me personally tiger@todays-tech.com

Rebecca,
I know how you feel. I get so frustrated with myself when i cannot control my emotions, i have never been like that before. my latest issue, is when we go to church...i cannot seem to sit still for the entire sercivice. i find myself getting very anxious and irritable. it seems like the music is getting louder and the pastor is talikg louder. my husband says later that it wasnt any different than before...but, it sure feels different. yesterday, i took a string of beads that i could mess with...and that helped. i think that maybe my sundays of worshipping at morning service are growing short. i think it is too much stimulation.
i also have found that i do not have patience for a lot of things...then i realize later what i did...and apolgize.
i think that we really cannot help so many of the things that we say and do.
i would be glad to talk to you anytime. i also feel so alone.....tracey was very helpful to me when i was first diagnosed....she helped me know that i wasnt crazy.
i dont really know how to get around this website very well...so, it takes me awhile to find new people....you can call me anytime...
when you are so young...other people have no idea what it is like to have this disease.....only people that are experiencing it at the same time can relate. just know that you are not alone!! we love you!!!!!
Tracy's book...young hope, the broken road...would help you understand alot of the feelings you are or will go through...it also would help your husgand or any other frined or loved one understand. it also opens up alot of discussions about things that you havnt talked aobut before...becuase you were afraid, or you hadnt thought of it.... the book doesnt cost alot and comes pretty quick after you order...it is also really easy to read...my hubby isnt a reader...and he didnt mind reading it.

anyway....please know that i am here for you too. call me anytime....
my name is tami, and i am 45 years old.
tami hoops
740-701-9581

quote:

Originally posted by Rebecca Groves:
Hello,

I have demtia at age 58 and I am here.
Today I became angry with a strnger and my husband. Today was not the first time. I find that I do not want to leave the house. I never know what my behavior will be like.

Can anyone relate?

I am here. I am sure there are many who feel too depressed to respond. I am responding today, but, I may not be able to tomorrow. I am glad to have this site to read, even if I am unable to respond. I can relate to all of you with AD, and appreciate those who are care givers. The care givers can become depressed also. I worry about becomming any kind of burden to my family. I have always been independent, willful, and very stubborn! A quote is going through my head for some reason. I cannot remember the author, but, it goes something like this: "I will not go quietly into that dark night......" It is so strange that I was once a care giver of Alzheimers patients, but, it was only 40 hours a week. I could go home and rest. I cannot imagine 24/7! Not to say that I did not care for my patients. I loved them all and remember them still. I just cannot seem to remember what I did yesterday! I have good credit still, am obssesive about keeping my bills paid on time, but, it is getting harder to remember what I have done. I stress out over "did I put that one on auto pay, or was that the other one" I call customer services and forget what bank I am talking to, and get so confused, as well as confusing them also, but I still pass all the cognitive tests, so far. Hang in there to all of you. I am here. I am listening to all, and can relate. I am so grateful for this board and grateful to the ALZ society. They call me now and then to see how I am doing. And they are so kind. At work, I would be assigned to take care of the AD patients. They told me I had a way with them and could calm them. Ironic? Now, if I could just do that for me!

Hi Marci, welcome to the forum. Ditto for me on everything you said about trying to hold it together. Having Dem/Alz is a real bummer for sure!!!


You are in the right place to get that support that you need.

Hi guys I'm still around.I have slipped backwards the last 6 mos.& after seeing my Neuro today i'm back on Razadyne.
I expect to gain back some if not all i lost.I did before so why not now?

I am here.....seeeeeee . I too have been busy seeing doctors and getting a nerve block in my neck. I still have to go for more test since I stopped 2 of my meds last month so now I have to see what the doctors have to say about it. I think I am doing fine but one doctor seems to think I need to be back on something for depression...........


We shall see..............hmmmmm

quote:

Originally posted by Rebecca Groves:
Hello,

I have demtia at age 58 and I am here.
Today I became angry with a strnger and my husband. Today was not the first time. I find that I do not want to leave the house. I never know what my behavior will be like.

Can anyone relate?

I sure can! I end up apologizing later to people, and seems like a lot, lately. I walked out on one of the Doctors I was sent to. That is just not me! Vent,pray, whatever helps. Now that I am aware of my tendency, I really do try to control it, but, not so easy some days. I would like my vocal chords removed and lips sewn shut. Some of us are at least quiet. I can't seem to shut up.

I found a chat line at alz.org that appears to have daily activity and very supportive

quote:

Originally posted by younghope1:
There use to be alot of people with dementia that partricipated on here, where have you gone? Why have you gone? I feel so alone in this group. Please come back!

I have found other chat lines, have you?

quote:

Originally posted by younghope1:
There use to be alot of people with dementia that partricipated on here, where have you gone? Why have you gone? I feel so alone in this group. Please come back!

I am here and up too late.

Hope this thread is not dead.
i just found this site today and have not been so excited in years
i feel like the last unicorn that found the lost herd )
finally i read things from folks and i thing THATS IT!!!!! THEY GET Ii)))
Then i read an irritating post but im learning to look at the signatures and just not read the on that have titles and such and im not aggrovated now))
Almost everything that was said on this tread thrilled me and told me i was not alone
i too can no longer go to church or a movie( unless i go in middle of week at noon and no one in theatre)
cant go to family reunions and such either
the noise just gets unbearable( wife tells me noise not bad also)
and must chose to either practice taoist breathing or strangle everyone in the room and mostly i chose to breathe until i can get out)
i have tried to develop alternate internal actions to help me when i get so frustrated and freaked out and would love to hear methods anyone of your use.
Mostly i wanted to thank all of you who wrote here. ONly you can imagive the light it casts into my darkness

Welcome Alphawave, sorry for what brought you to us but glad you are here. Noise is a very big issue for most people with dementia. I don't go to many reunions either and that has caused upset feelings in the family because they don't understand and think I am just being unsocialable. When I am around a situation and there is alot of noise I find myself a quiet room and go in there for as long as I need to. The quiet room does help. I have learned I have to do what is best for me and not worry about what the others think.
Where are you from?

thanks for the rely younghope))
seems we handle the situation much the same
i am happy so say that after a year or so my family no longer takes it person when i leave the group and go to a back room so that releaves a lot of stress )
i moved from LA to Ill. after i beacome ill and moving to a rural village of about 3k has helped a lot.
again thanks for your rely i found this site late last night and im afraid went crazy posting in my excitment.
i found out this morning i offended some caretakers with my posts and i feel terrible about it. on a bright note i feel like i have found new friends amoung some the other early onset folks the are in my shoes and that is huge as i bet you already know