I am just signing up for this and really I should have done it a few years ago. My mother was diagnosed at 56yo and she is now 59yo. I must say I have not done a good job coping with her disease. I even work in healthcare and am very aware of what to expect with this disease...I think... I initially approached her and her disease very clinically and bought books for my Dad to read to inform him ... not myself. I have in some ways avoided her and been angry with my Dad for not understanding and being in denial about what her capabilities are now. He keeps thinking she is not going to get any worse because of the clinical trial she is involved with at OSU. Yet she cannot follow a recipe to make a box cake anymore and is starting to leave burners on the stove. Her social filter has come off and she is saying things she should have a long time ago! We never know just what is going to come out of her mouth now. I think for some of this you just have to laugh...right? I appreciated reading an earlier log about asking questions, I guess I need to come up with a list of information I want to know from her before it is lost forever. Is there any other ideas/information I need to be aware of during this brief window of opportunity I should take advantage. We have already been to the attorney and have done Living Wills and Health Care POA's. Thanks for being there so I can finally vent to a group who understands.
Sonja

Hi Sonja,

I just wanted to welcome you to the website. I would also suggest that you post your questions/comments on the Caregivers Forum, as I believe you would get a lot more input and feedback.

Cindy