Hey Bill,
How did the neuropsych testing go today?

R U OK?

Lisa,

Here is what I posted in the Auditory Hallucinations thread, Sweetie......


Dear Hearts

I'm afraid that IT didn't go at all!

I went, but when I got there I got sent home, because my new insurance had not kicked in because they didn't get the check.

So it will be re-scheduled. I could have paid for it out of pocket, but it woulda cost me 2K.

All that sleep lost for nothing

Plus, I had an "event" last night which caused me to call our "rescue" line to get some TLC.

Also got some help from our own Alan_in_Colorado in the form of a post. Thanks, pal.

Don't know what happened. I guess it just all came "rushing in" on top of me at once, and I couldn't handle it on my own, so I "reached out and touched" Kathy at the 24 Hour Help Line and both she and Alan reached out and "touched me back."

Tommy, if you're reading this, get that "storm" off your face, Buddy . You help me so much during the normal hours, I just WASN'T gonna wake you and Gerri up to listen to me bawlin', okay? Still love me, though, right?

I TRY real hard to be positive and everyone's biggest fan, but sometimes the loneliness just gets too much for me to handle....

So..... what else can I tell ya'?

OH! The Myoclonus (jerking muscles) was so bad this morning I looked like a spastic belly dancer, kids! It made me walk funny and I had to hold my neck real still so it wouldn't hurt which also made it hard to breathe.

Man! I was a SIGHT when I got to Emory - guess it was a good thing they sent me home.

If you want some idea of what I looked like feeling like that, picture a guy walking down the sidewalk on stilts - one shorter than the other - with his body at "military attention", and a rictus-type grin on his face from the pain, and that would be me!


Holy Sh*t, Y'all! Never had symptoms THAT bad before! Called my local neuro guy from the car and he's going to "squeeze me in" Friday of next week.

Love,

Bill

Oh Bill,
I'm so sorry! I wish I could be there to give you a big hug.
Do you take meds for the myoclonus? I take clonazepam which works pretty well. I take it @ bedtime because it makes me drowsy. 1 mg seems to do the trick.
I know about the cost of neuropsych testing. I had to pay it and then FIGHT with the insurance Co. to cover it but they finally did.

Hang in there.

You are in my thoughts and prayers.

You are also in my prayers Bill, hang in there!
Marcia