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Posted
It comes on at 6:30 here in south florida..some report on dementia..new treatment..reminds me of the post on "the cure"...don't know much..mom called to tell me to watch it..thought I would pass it along..

kim


"people will forget what you say, people will forget what you do, but they will never forget how you made them feel" maja angelou
 
Posts: 990 | Location?: st pete,fl | Registered: August 30, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
Thanks for the heads-up Kim!
Marie


Do not anticipate trouble, or worry about what may never happen. Keep in the sunlight. - Benjamin Franklin
 
Posts: 304 | Location?: Denver, CO | Registered: July 15, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
I saw the preview. My first thought was that the "controversial treatment" is palliative care/comfort care only. We'll see.


______________________
Contact your local and federal representatives to get financial support for providing care for your loved ones at home. Ask them to support full funding for the Lifespan Respite Care Act.
 
Posts: 1167 | Registered: May 24, 2009Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
Thank you. I am going to watch it in 23 minutes. Glad I checked here because I would not have known about it.
 
Posts: 1012 | Location?: New York | Registered: June 23, 2009Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
Me too! Thank you, Kim.


maebee1@comcast.net
(former caregiver of MIL)
"Be not forgetful to entertain strangers; for thereby some have entertained angels unaware."
Heb 13:2


 
Posts: 6603 | Location?: S.E.Michigan | Registered: May 01, 2005Reply With QuoteEdit or Delete MessageReport This Post
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Oh I sure hope I can see this over here in CA. I get out of work at 7pm so I'm thinking that might be too late. Frowner
 
Posts: 329 | Location?: Montebello/Downey, CA | Registered: November 10, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
Thanks, I plan to watch at 5:30.
 
Posts: 146 | Location?: San Jose | Registered: November 06, 2008Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
I just watched it. It just repeated what was in the New York Times article about advanced dementia being a terminal disease and doctors shouldn't put the patients through painful treatments to prolong the disease, since it's a terminal disease. It also advocates hospice care. It really repeated what was the article last week. Honestly, do any of us on here not realize that this is a terminal disease?

P.S. Hello San Jose Pat Wink
 
Posts: 1012 | Location?: New York | Registered: June 23, 2009Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
yeah marj..not what I thought it was going to be...I am glad the mainstream media seems to be giving a "little" more attention to this awful disease but as we all know we have a very long way to go in educating people...I am grateful that my parents have their wishes in writing so I don't have to guess or fight with a certain sibling about it...like this woman in the report said she has to "guess" what her mom would want...

kim


"people will forget what you say, people will forget what you do, but they will never forget how you made them feel" maja angelou
 
Posts: 990 | Location?: st pete,fl | Registered: August 30, 2008Reply With QuoteEdit or Delete MessageReport This Post
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My mother also put her wishes down in writing, in her health care proxy. She did this long before the AD monster showed it's ugly head. She also told me time and time again that she wants to be cremated. I'm glad I won't have to make those decisions.

I really wish there was a way to get more public education about this horrid disease. I think I'm going to write to my congress people. It can't hurt.
 
Posts: 1012 | Location?: New York | Registered: June 23, 2009Reply With QuoteEdit or Delete MessageReport This Post
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I agree Marjk, maybe if we all write a letter every week. Maybe then we can get some attention. I wish there was something else we as a group could do. I was trying to think of a way to get into the schools and get a group of people together to speak nationally. There are plenty of children and teens that have been effected by this. My son is 15 and helps me with the care of my Dad. Just throwing some ideas out there. Any Thoughts??


Midlothian, VA.
Be positive and take one day at a time!
 
Posts: 15 | Registered: September 18, 2009Reply With QuoteEdit or Delete MessageReport This Post
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We should all write to David Hyde Pierce and ask him to be more vocal about this. He is the national spokesperson.
 
Posts: 1012 | Location?: New York | Registered: June 23, 2009Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
tamilv, have you seen the short video "my name is lisa" on the alz.org teen website? http://www.alz.org/living_with...r_kids_and_teens.asp

Iris L.


I am my own caregiver.
 
Posts: 886 | Location?: Southern CA | Registered: February 23, 2009Reply With QuoteEdit or Delete MessageReport This Post
Posted Hide Post
I have seen the "Lisa" film and forwarded it to several family and friends...its very very good and the way its done is simple and the lil actress is great..the impressions in each scene were strong but not scary...most of the general public is so scared of AD they just ignore it or think it can be solved with a pill like the marketing campaigns of aricept and such...

We just have to keep speading the word.


"people will forget what you say, people will forget what you do, but they will never forget how you made them feel" maja angelou
 
Posts: 990 | Location?: st pete,fl | Registered: August 30, 2008Reply With QuoteEdit or Delete MessageReport This Post
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You'd be surprised at the people who don't know, don't care or can't grasp that AD is fatal. Otherwise, we'd never put our ADLO's through some of the barbaric things we do to prolong their lives. I'm talking about feeding tubes and stuff like that.


Guilt. It's not just for parents anymore! Smiler
 
Posts: 1383 | Location?: Alvarado TX | Registered: March 02, 2009Reply With QuoteEdit or Delete MessageReport This Post
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