I have been a 24/7 care giver for over 2 years, for my mom, who is in the ladder stages of Alzheimer, and is in hospice mode. I work full time as well, I have 31 hours of respite services, and a friend of mine helps with the rest of the hours, I have more money going out than coming in, I have searched and searched for resources, and help. I live in Kansas city MO. does anyone know of any resources I may not know of for financial help? Thanks, for any help someone could give!!!

ikbchef,

I'm sure there must be help out there for you. If I were you, I think I'd start with the local chapter of the Alzheimer's Association and/or the hot-line at 1-800-272-3900. Perhaps they can give you some more specific advice for your area.

My heart goes out to you. I hope you find some help soon, as you certainly don't need the added stress of financial concerns on top of all you already deal with.

Let us know what you find out.

If your mom or her husband are/were veterans, veterans "aid and attendance" benefits may be available.

Have you called the Medicaid office? Ask what they have for in-home care.

If she's truly at the very end, it might be time for hospice at a NH. They seem to get some extra attention.

I agree with all above..start with local Alz/ Assoc. chapter..do nto give up..there has got to be resources in your area to help you..I will be thinking of you as I know your doign the absolute best you can in this situation..

For quite some time, there was a link on our forum for Caregivers from Missouri--for a specially funded program in your state.

I don't know if it still exists but if you write to the "contact us" at the top of the page, they may be able to put you in touch with the people who were running it...

Good luck!

I recommend, as I usually do, that in addition to contacting the association, you talk with a geriatric care manager, or an elderlawyer, or both. Often you can find a care manager through an elderlawyer. Between the two, they're likely to know about programs - some of them obscure - that might help. It made a diffence in my case.


Best,
Alan