Alzheimer’s Association Online Community
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Alzheimer’s Association Online Community |
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Do not ask me to remember.
Don't try to make me understand. Let me rest and know you're with me. Kiss my cheek and hold my hand. I'm confused beyond your concept. I am sad and sick and lost. All I know is that I need you To be with me at all cost. Do not lose you patience with me. Do not scold or curse or cry. I can't help the way I'm acting, Can't be different 'though I try. Just remember that I need you, That the best of me is gone. Please don't fail to stand beside me, Love me 'till my life is done. - Unknown |
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Alzheimer Patient's Prayer
Pray for me,I was once like you.Be kind and loving to me,That's how I would have treated you. Remember I was once someone's parent or spouse,I had a life and a dream for the fulture.Speak to me,I can hear you even if I don't understand what you are saying.Speak to me of things in my past of which I can still relate.Be considerate of me,my days are such a struggle.Think of my feelings because I still have them and can feel pain.Treat me with respect because I would have treated you that way.Think of how I was before I got Alzheimer's;I was full of life,I had a life,laughed and loved you.Think of how I am now,my disease distorts my thinking,my feelings,and my ability to respond,but I still love you even if I can't tell you.Think about my future because I used too.Remember I was full of hope for the future just like you are now.Think how it would be to have things locked in your mind and can't let them out.I need you to understand and not blame me,but Alzheimer's.I still need the compassion and the touching and most of all I still need you to love me.Keep me in your prayers because I am Between life and death.The love you give will be a blessing from God and both of us will live forever.How you live and what you do today will be remembered in the heart of the Alzheimer's Patient. by Carolyn Haynaili |
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TEN REQUESTS OF THE ALZHEIMER'S VICTIM
PLEASE BE PATIENT WITH ME Remember, I am the helpless victim of an organic brain disease which is out of my control. TALK TO ME Even though I can not always answer you. I can hear your voice and sometimes comprehend your words. BE KIND TO ME For each day of my life is a long and desperate struggle. Your kindness may be the most special and important event of my day. CONSIDER MY FEELINGS For they are still very much alive within me. TREAT ME WITH DIGNITY AND RESPECT As I would have gladly treated you if you had been in this bed. REMEMBER MY PAST For I was once a healthy, vibrant person full of life, love and laughter with abilities and intelligence. REMEMBER MY PRESENT I am a fearful person, loving wife, mother Grandmother and dear friend, who misses my family and home very much. REMEMBER MY FUTURE Though it may seem bleak to you, I am always filled with hope for tomorrow. PRAY FOR ME For I am a person who lingers in the mists that drift between time and eternity. Your presence may do more for me than any of the outreach of compassion you could extend to me. LOVE ME And the gifts of love you give will be a blessing from which will fill both our lives with light forever. |
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Alzheimer's Disease Bill of Rights
2:14 PM on Mar. 20, 2008 Alzheimer's Disease Bill of Rights 1. To be informed of one's diagnosis 2. To have appropriate, ongoing medical care. 3. To be productive in work and play for as long as possible. 4. To be treated like an adult, not a child. 5. To have expressed feelings taken seriously. 6. To be free from psychotropic medications, if possible. 7. To live in a safe, structured, and predictable environment. 8. To enjoy meaningful activities that fill each day. 9. To be outdoors on a regular basis. 10. To have physical contact, including hugging, caressing, and hand holding. 11. To be with individuals who know one's life story, including cultural and religious traditions. 12. To be cared for by individuals who are well trained in dementia care. |
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Carepartner's Bill of Rights
I have the right: 1. To take care of myself. This is not an act of selfishness. It will give me the capability of taking better care of my loved one. 2. To seek help from others even though my loved one may object. I recognize the limits of my own endurance and strength. 3. To maintain facets of my own life that do not include the person I provide care for, just as if I would if he or she were healthy. I know I do everything I reasonably can for this person and I have the right to do some things for myself. 4. To get angry, be depressed and express other difficult feelings occasionally. 5. To reject any attempt by my loved one (either consciously or unconsciously) to manipulate me through guilt, anger or depression. 6. To receive consideration, affection, forgiveness and acceptance for what I do for my loved one as long as I offer these qualities in return. 7. To take pride in what I am accomplishing and to applaud the courage it has taken to meet the needs of my loved one. 8. To protect my individuality and my right to make a life for myself that will sustain me in the time when my loved one no longer needs my help full-time. 9. To expect and demand that as new strides are made in finding resources to aid physically and mentally impaired people in our country, similar strides will be made toward aiding and supporting caregivers. By Wendy Lustbader |
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IF TOMMORROW NEVER COMES
If I knew it would be the last time That I'd see you fall asleep, I would tuck you in more tightly, And pray the Lord your soul to keep. If I knew it would be the last time That I'd see you walk out the door, I would give you a hug and kiss, And call you back for one more. If I knew it would be the last time I'd hear your voice lifted up in praise, I would video tape each action and word, So I could play them back day after day. If I knew it would be the last time, I could spare an extra minute or two, To stop and say "I love you," Instead of assuming you would know I do. But just in case I might be wrong, And today is all I get, I'd like to say how much I love you, And I hope we never forget. Tomorrow is not promised to anyone, Young or old alike, And today may be the last chance You get to hold your loved one tight. So if you're waiting for tomorrow, Why not do it today? For if tomorrow never comes, You'll surely regret the day. That you didn't take that extra time For a smile, a hug, or a kiss, And you were too busy to grant someone What turned out to be their one last wish. So hold your loved ones close today, And whisper in their ear, That you love them very much, and You'll always hold them dear. Take time to say "I'm sorry," "Please forgive me," "thank you" or "it's okay". And if tomorrow never comes, You'll have no regrets about today. |
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Thank you hoop for placing these all in one place I can refer to when I need to take heart and go on.
Sheryl In this life we cannot do great things. We can only do small things with great love. Mother Teresa |
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In this life we cannot do great things. We can only do small things with great love. Mother Teresa Thank You! That is what I needed to hear!I can only do small things with Great Love.HUGS! Marcus |
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The Alzheimer Prayer by Tracy Mobley
Dear Lord I come to you in prayer as I need your help -------------------------------------------------------------------------------- You see I used to be a bright,intelligent and careing person -------------------------------------------------------------------------------- I use to care for the sick,I was a Wife and a Mother -------------------------------------------------------------------------------- I was the caretaker of all things -------------------------------------------------------------------------------- I was there when someone needed a shoulder to cry on -------------------------------------------------------------------------------- I was always loving and strong -------------------------------------------------------------------------------- I was there when someone needed a laugh -------------------------------------------------------------------------------- I was there to tend the hurts -------------------------------------------------------------------------------- I was there to make the world keep spinning -------------------------------------------------------------------------------- But you see Dear Lord,all of that has changed -------------------------------------------------------------------------------- As I am now alittle slower than use to be -------------------------------------------------------------------------------- I still care,but many times what I say comes out all wrong -------------------------------------------------------------------------------- I am still a Wife and a Mother,but now they take care of me -------------------------------------------------------------------------------- I do most of the crying now -------------------------------------------------------------------------------- I don't always know how to show my love and I have become weak -------------------------------------------------------------------------------- I still laugh alot but mostly at myself -------------------------------------------------------------------------------- Seems at times I cause more hurt than I help -------------------------------------------------------------------------------- No matter what I do,I feel that I am spinning out of control -------------------------------------------------------------------------------- I am here to ask you Lord,I know we can't change things back to what used to be -------------------------------------------------------------------------------- But maybe,every once in awhile just maybe a glimpse of who I was will appear,even if it's just a twinkle in my eye -------------------------------------------------------------------------------- Let my family know that I am still Me,I just have a disease and it has taken me to another place -------------------------------------------------------------------------------- A place that is dark and full of shadows and unknown places -------------------------------------------------------------------------------- Let them know that I need their touch from time to time -------------------------------------------------------------------------------- Maybe a hug or a squeeze or a kiss on the cheek -------------------------------------------------------------------------------- Someday I may wander into those shadows with no return -------------------------------------------------------------------------------- Let them know that it is okay,because where I am going from here is a place where I will never forget to remember again,I will never be sad or lonely and will have the biggest smile upon my face as I wait for them to follow when they come into the shadows -------------------------------------------------------------------------------- One more thing Dear Lord before I forget,if I can no longer speak Will you let them know that I love them and though I may have changed,I am still the same Me. |
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The Serenity Prayer
God Grant me the serenity to accept the things I cannot change ----------------------------------------------- Courage to change the things I can ------------------------------------------------ And the wisdom to know the difference. ------------------------------------------------ Living one day at a time,Enjoying one moment at a time. ------------------------------------------------ Accepting hardships as the pathway to peace. ------------------------------------------------ Taking as He did this sinful world as it is,Not as I would have it. ------------------------------------------------ Trusting that he will make all things right if I surrender to His will ------------------------------------------------ That I will be reasonably Happy in this life ------------------------------------------------ And Supremely Happy in the Next! Amen |
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The Prayer of Saint Francis
Lord Make me an instument of thy peace -------------------------------------------------------------------------------- Where there is Hatred...Let me sow Love -------------------------------------------------------------------------------- Where there is Injury...Pardon -------------------------------------------------------------------------------- Where there is Doubt...Faith -------------------------------------------------------------------------------- Where there is Despair...Hope -------------------------------------------------------------------------------- Where there is Darkness...Light -------------------------------------------------------------------------------- Where there is Sadness...Joy -------------------------------------------------------------------------------- O Devine Master,Grant that I may not so much seek to be consoled...As to Console. -------------------------------------------------------------------------------- To be Understood...As to Understand -------------------------------------------------------------------------------- To be Loved...As to Love -------------------------------------------------------------------------------- For it is in Giving...That we Receive -------------------------------------------------------------------------------- It is in Pardoning...That we are Pardoned -------------------------------------------------------------------------------- It is in Dying...That We are Born to Eternal Life! |
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I Said A Prayer For You Today
I Said A Prayer For You Today And I Know God Must Have Heard I Felt The Answer In My Heart Although He Spoke No Word I Didn't Ask For Wealth Or Fame(I Knew You Would Not Mind) I Ask Him To Send Treasures Of A Far More Lasting Kind I Ask That He Be Near You At The Start Of Each New Day To Grant You Health And Blessings And Friends To Share Your Way I Ask For Happiness For You In All Things Great and Small But It Was For His Loving Care I Prayed The Most Of All! |
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hoop, this is really great. Thank you for putting them together. I know that I will come back here many times.
caregiver to aunt |
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